View Printer Friendly Version

The mission of the International OCD Foundation is to help individuals with obsessive compulsive disorder (OCD) and related disorders to live full and productive lives. Our aim is to increase access to effective treatment, end the stigma associated with mental health issues, and foster a community for those affected by OCD and the professionals who treat them.

About the International OCD Foundation

The International OCD Foundation is a donor-supported nonprofit organization. Founded in 1986 by a small group of individuals with OCD, the Foundation has grown into an international membership-based organization serving a broad community of individuals with OCD and related disorders, their family members and loved ones, and mental health professionals and researchers. We have affiliates in 22 states and territories in the US, in addition to partnerships with other OCD organizations around the world.

The Foundation aims to improve outcomes for individuals with OCD and related disorders by:


  • Providing resources and support for those affected by OCD, including individuals with OCD and related disorders, their family members, friends, and loved ones.
  • Increasing access to effective treatment through: 
    • Educating mental health professionals about evidence-based treatments.
    • Providing a forum for professional collaboration and networking.
    • Supporting research into the causes of and treatments for OCD and related disorders.
  • Promoting awareness about OCD and related disorders to the OCD community and the general public.  


Our Programs

Annual Conference 

  • The only national conference dedicated to OCD and related disorders.
  • Gives people with OCD, their families, researchers and treatment providers the chance to share their personal experiences and learn beside one another during more than 100 presentations.
  • Well-known OCD researchers and experienced clinicians introduce their latest theories and research findings and demonstrate their successful treatment techniques.

Behavior Therapy Training Institute (BTTI) 

  • Addresses the shortage of therapists who are properly trained in the cognitive behavioral treatment of OCD.
  • Since 1995, the BTTI faculty has trained hundreds of therapists around the country to provide the most up-to-date, effective treatments for OCD.

Research Grants 

  • The IOCDF awards grants to investigators whose research focuses on the nature, causes and treatment of OCD and related disorders.
  • The money to fund these awards is donated by our members and friends of the Foundation.
  • Since 1994, over $2,700,000 in research grants have been awarded.

OCD in the Classroom 

  • In many cases, teachers may be the first one's to encounter a child's OCD symptoms.  Our "OCD in the Classroom" program teaches school personnel to detect OCD symptoms in kids and to assist in getting them the help they need.
  • Your membership dues and donations will help us revamp and update this progam.

OCD Newsletter

  • One of the benefits of being an IOCDF member, our quarterly newsletter includes updates about the latest in research, resources and recovery in OCD.

IOCDF Affiliates 

  • Affiliates carry out the mission of the national organization at a local community level.

Genetics Collaborative Board 

  • Encourages researchers focusing in genetics to work with one another and to share their findings and DNA samples.
  • The goal of the Board is to identify the genetic causes of OCD.

Speakers Bureau 

  • Includes people with OCD and family members who understand firsthand the challenges of the disorder as well as respected clinical and research experts who treat those with OCD.
  • Our speakers provide informative presentations and interviews to a variety of audiences

OCD Awareness Week 

  • The IOCDF and its affiliates from across the country come together each October to educate their communities and the public as a whole about OCD and its treatments.


Board Of Directors


Denise Egan Stack LMHC, President

Susan B. Dailey, Vice President

Michael J. Stack CFA, Treasurer

Diane Davey RN, Secretary

Jeff Bell

Michael Jenike, MD

Paul A. Mueller

Shannon A. Shy, Esq

Christina Vertullo

Carter Waddell

Joy Kant, Emeritus 

Patricia Perkins, JD, Emeritus 




Jeff Szymanski, Ph.D., Executive Director 

Pamela Lowy,  Director of Operations and Finance 

Jeff Smith, Director of Development  

Marissa Keegan, Program Director 

Carly Bourne, Director of Communications 

Stephanie Cogen, MPH, MSW, Assistant Program Director 

Fran Harrington, Web Developer 

Grace Riley, Administrative Assistant


Scientific Advisory Board

Michael Jenike, M.D., Chair
Massachusetts General Hospital, Boston, MA
OCD Institute, McLean Hospital, Belmont, MA

Sabine Wilhelm, Ph.D., Vice Chair
Massachusetts General Hospital, Boston, MA
Harvard Medical School, Boston, MA

Jonathan S. Abramowitz, Ph.D.
University of North Carolina at Chapel Hill, Chapel Hill, NC

Thröstur Björgvinsson, Ph.D.
The Houston OCD Program, Houston, TX

Dennis S. Charney, M.D.
Mount Sinai School of Medicine, New York, NY

James Claiborn, Ph.D.
South Portland, ME

Darin D. Dougherty, M.D.
Massachusetts General Hospital, Boston, MA
OCD Institute, McLean Hospital, Belmont, MA

Jeanne Fama, Ph.D.
Massachusetts General Hospital, Boston, MA

Jamie Feusner, M.D.
University of California at Los Angeles, Los Angeles, CA

Edna B. Foa, Ph.D.
University of Pennsylvania, Philadelphia, PA

Martin E. Franklin, Ph.D.
University of Pennsylvania, Philadelphia, PA

Randy Frost, Ph.D.
Smith College, Northampton, MA

Wayne K. Goodman, M.D.
Mount Sinai Medical Center, New York, NY

Jonathan Grayson, Ph.D.
The Anxiety and OCD Treatment Center, Philadelphia, PA

Benjamin D. Greenberg, M.D., Ph.D.
Butler Hospital, Providence, RI

John H. Greist, M.D.
Madison Institute of Medicine, Madison, WI

William A. Hewlett, M.D., Ph.D.
Vanderbilt University Medical Center, Nashville, TN

Jonathan Hoffman, Ph.D., ABPP
NeuroBehavioral Institute, Weston, FL

Nancy J. Keuthen, Ph.D.
Massachusetts General Hospital, Boston, MA

Lorrin M. Koran, M.D.
Stanford University Medical Center, Stanford, CA

Bruce Mansbridge, Ph.D.
Austin Center for the Treatment of OCD, Austin, TX

Charles S. Mansueto, Ph.D.
Behavior Therapy Center of Greater Washington, Silver Spring, MD

Patrick McGrath, Ph.D.
Alexian Brothers Behavioral Health Hospital,  Hoffman Estates, IL

Dean McKay, Ph.D.
Fordham University, Bronx, NY

E. Katia Moritz, Ph.D., ABPP
NeuroBehavioral Institute, Weston, FL

Tanya K. Murphy, M.D.
University of South Florida, St. Petersburg, FL

Gerald Nestadt, M.D., Ph.D.
Johns Hopkins Hospital, Baltimore, MD

Fugen Neziroglu, Ph.D.
Bio-Behavioral Institute, Great Neck, NY

Michele Pato, MD
University of Southern California, Los Angeles, CA

David Pauls, Ph.D.
Harvard Medical School, Boston, MA
Massachusetts General Hospital, Boston, MA

Fred Penzel, Ph.D.
Western Suffolk Psychological Services, Huntington, NY

Katherine A. Phillips, M.D.
Rhode Island Hospital, Providence RI

John Piacentini, Ph.D., ABPP
UCLA, Los Angeles, CA

Christopher Pittenger, M.D., Ph.D.
Yale University, New Haven, CT

C. Alec Pollard, Ph.D.
St. Louis Behavioral Medicine Institute, St. Louis, MO

Judith L. Rapoport, M.D.
National Institute of Mental Health, Bethesda, MD

Steven Rasmussen, M.D.
Butler Hospital, Providence, RI

Scott L. Rauch, M.D.
Massachusetts General Hospital, Boston, MA
McLean Hospital, Belmont, MA

Bradley C. Riemann, Ph.D.
Rogers Memorial Hospital, Oconomowoc, WI

Barbara Rothbaum, Ph.D.
Emory Clinic, Atlanta, GA

Sanjaya Saxena, M.D.
Professor, UCSD Department of Psychiatry
Director, UCSD Outpatient Psychiatric Services

H. Blair Simpson, MD, PhD
Anxiety Disorders Clinic, Columbia University, New York, NY

Gail Steketee, Ph.D.
Boston University, Boston, MA

S. Evelyn Stewart, M.D.
University of British Columbia
Massachusetts General Hospital
McLean Hospital

Eric A. Storch, Ph.D.
University of South Florida, St. Petersburg, FL

Susan Swedo, MD
National Institute of Health, Bethesda, MD

Barbara L. Van Noppen, Ph.D.
University of Southern California, Los Angeles, CA

Aureen P. Wagner, Ph.D.
Director, The Anxiety Wellness Center, Cary, NC

Allen Weg, Ed.D.
Stress & Anxiety Services of New Jersey
East Brunswick, NJ

Monnica T. Williams, Ph.D.
University of Louisville, Louisville, KY

Robin Zasio, Psy.D., LCSW
The Anxiety Treatment Center, Sacramento, CA

Financial Documents


Annual Reports  990s 
2010 Annual Report
2011 Annual Report
2012 Annual Report 
2009 Form 990
2010 Form 990
2011 Form 990